Patient was diagnosed in October 2022; Surgery costs R$200,000 in the private network
After a year and a half of monitoring the evolution of scoliosis in the dorsolumbar spine, and finally, in February 2024, being on the waiting list for the surgery that would restore freedom to 13-year-old Emmily, hope for a “cure” came as a “a bucket of cold water” upon discovering that the two hospitals in Campo Grande that perform the surgery do not have the infrastructure to carry out the procedure.
The teenager was diagnosed in October 2022 and, since then, has been monitored by the SUS (Unified Health System), to undergo the long-awaited – and necessary – surgery. In the private network, the procedure would cost around R$200,000, an amount that the 30-year-old self-employed mother cannot afford. Among the cases that end up in court seeking to guarantee surgery, the majority of sentences in the Capital refer to orthopedic procedures.
The patient is monitored for the development of the disease at the University Hospital and treated at the CEM (Center for Medical Specialties), because she also has asthma. According to the mother, Camila, 30 years old, their hope for surgery funded by the public system was dashed after being informed by employees at the University Hospital that in Campo Grande there is no equipment or specialist doctors to perform the surgery.
In March 2023, Camila sought legal assistance from the Public Defender’s Office to try to speed up the consultations and exams that her daughter needed to undergo to treat her health problems.
The mother says that her daughter’s situation gets worse with each day that she goes without surgery. She feels intense pain in her back, which became worse after stopping her pain medication due to her asthma, due to the occurrence of asthmatic attacks in the teenager.
The situation saddens the mother. “We have already been disillusioned and disillusioned. We were informed that in addition to not having material for the surgery, there is also no doctor to perform her surgery. In August I was informed that the hospital did not have the x-ray machine needed for surgery and that there was no forecast [de ter o equipamento]. In December, the doctor who was going to operate on her retired”, laments Camila.
She also has two other daughters, aged 11 and 3, and survives on government aid, pointing out that she is unable to work a steady job because she has to take care of her eldest daughter. She reveals that she spends around R$500 per month on medicines, exams and consultations not covered by the SUS.
The mother says that the spinal deviation limits the teenager’s life, that “she can’t do sports because there is a risk of falling and hurting her spine, she can’t carry weight, she can’t bend down. She doesn’t have the life of a teenager. Imagine the sadness ?”
A report contacted the Ministry of Health to find out about the structure available in Mato Grosso do Sul to treat surgical cases of lordosis and scoliosis. However, until the publication of this article, there had been no response. The space remains open for possible clarifications.
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Tags: Abandoned SUS teenager waits years scoliosis surgery Direto das Ruas
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